The HSP Support Group AGM, held in person on Sunday 26th July 2026

Highlights:
What is HSP? (00:26)
Books about HSP (13:40)
Counselling Service (17:35)
Trustees (31:06)
Raising Awareness Award (40:22)
Fundraising Award - 1/2 Iron Man (44:20)
Fundraising Award - Nevis for Noah (45:40)

Links:
Support group website: https://hspgroup.org/
NHS HSP page: https://www.nhs.uk/conditions/hereditary-spastic-paraplegia/
HSP Patient Journey: https://www.ern-rnd.eu/patient-journey-hereditary-spastic-paraplegias-hsps/
Estelle Book: https://www.amazon.co.uk/Living-well-Hereditary-Spastic-Paraplegia/dp/B0GQP1C4RH
Pip Book: https://www.amazon.co.uk/Guide-Hereditary-Spastic-Paraplegia-Professionals/dp/B0H8T36WXY
Research project list: https://hspgroup.org/supporting-research/

Full contents:
What is HSP? 00:26
About the support group 02:40
Meetings committee 04:12
Newsletter 05:44
Research committee - mollii 07:58
Research committee - project list 09:33
Website committee 10:18
Membership committee 11:02
Fundraising committee 12:32
HSP book - Living Well with HSP 13:40
HSP book - A Guide to HSP 14:52
Karate KUGB sponsorship 16:03
Counselling service 17:35
UCL open day 19:50
World HSP day 21:40
YouTube channel 23:17
Secretary report 24:44
Treasurer report 25:45
Voting results 28:18
Trustee elections 29:18
Trustees in year 31:06
Upcoming chair change - Adam 31:52
Upcoming chair change - Estelle 34:10
Any other business 37:10
AGM date 2027 38:35
Awards 40:02
Raising Awareness Awards for Meetings 40:22
Fundraising Award - 1/2 Iron Man (44:20)
Fundraising Award - Nevis for Noah (45:40)